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Type: BOOK - Published: 2021 - Publisher: Springer Nature

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Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II
Protecting Genetic Privacy in Biobanking Through Data Protection Law
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Authors: Dara Hallinan
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Hallinan argues that the substantive framework presented by the GDPR offers an admirable base-line level of protection for the range of genetic privacy rights e
Fundamentals of Clinical Data Science
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Authors: Pieter Kubben
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This open access book comprehensively covers the fundamentals of clinical data science, focusing on data collection, modelling and clinical applications. Topics
The Ethical and Legal Regulation of Human Tissue and Biobank Research in Europe
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Authors: Nils Hoppe
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"Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However,
Building Continents of Knowledge in Oceans of Data: The Future of Co-Created EHealth
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The domain of eHealth faces ongoing challenges to deliver 21st century healthcare. Digitalization, capacity building and user engagement with truly interdiscipl